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Every disease community should have a common, accessible patient registry.

We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community.

But registries are hard to maintain.

Registries are expensive. They need constant upkeep - usually by people with a lot of expertise in disease and data management. Often there are multiple competing registries for one disease, which leads to siloed, dead-end data that nobody can use.

Patient Crossroads is here to fix all of that.

Our CONNECT platform enables anyone - from individual patients to global research organizations - to collect and share disease data in a way that’s controlled, transparent and centered on patients’ best interests.

Is your organization interested in starting a patient registry?

Register on this demonstration site to experience the CONNECT registry just like your families will.

Ready for more? Submit the Registry Partner Enrollment Form to customize a registry with your organization's logo, contact information, message and disease specific surveys.

The Lung Cancer Registry is sponsored by: