Generating insights.
Everyone’s experience with lung cancer is unique. Sharing individual stories can help researchers find connections and shared experiences that can inform prevention, diagnosis, treatment, and survival. Participants in the Registry can explore how their experience compares with others’ and gain a better understanding of their disease.
Our research impact
Lung Cancer Registry participants helped break the silence on women, lung cancer and sexual health
SHAWL survey results were recently shared with top clinicians, researchers and scientists from across the world. Learn about key takeaways and how your participation in the Lung Cancer Registry fuels important research.
How it works
Step 1
Register for a free and secure account.
Step 2
Share your experience by completing surveys (5-20 minutes).
Step 3
Researchers look for patterns and clues to help answer important questions about lung cancer.
Step 4
Insights lead to better care and outcomes for people living with lung cancer.
Beyond research
When you join the Lung Cancer Registry, you’re not just providing data—you’re doing even more.
Your participation:
- Empowers individuals and their loved ones in their care.
- Helps others find connections and hope in the community.
- Enables doctors to personalize your care.
- Builds a legacy that advances science and saves lives.
The Lung Cancer Registry turns individual experiences into answers. Together, we’re improving care for every single person affected by lung cancer, including you.
What Drives Us
By sharing your lung cancer experience, you can help researchers uncover how each cancer is unique and find new ways to improve quality of life during and after treatment.
These findings help doctors identify patterns that improve care for everyone.
The Lung Cancer Registry isn’t just for people with lung cancer or loved ones of people with lung cancer - it also includes people at higher risk – such as those with a history of tobacco use, lung disease, or environmental exposures (such as 9/11 dust, radon, or wildfire smoke).
The more we learn about people’s daily lives and potential exposures, the better we can guide smarter screening and early detection, which may help people live longer, healthier lives.
Data leads to insights
Insights lead to improved care
Improved care leads to longer, healthier lives
More participants, answers
The Registry includes information from more than 3,500 people worldwide. Researchers and doctors working across different parts of lung cancer care can apply to learn more through the Registry.
Private & Secure
Your data is private and secure.
Only approved researchers can access de-identified data and will not be able to see your personal information.
Give hope, get hope
By sharing updates about your treatment every few months, you can have a personal record of your lung cancer experience. We will share published work with our members and keep you informed along the way. Plus, our team is just a phone call or email away for whatever support you need.
For researchers
Partner with us!
We are excited to share de–identified data from the Lung Cancer Registry with approved members of the research community. We can also work with researchers on surveys for specific research needs.
