Lung Cancer Registry Launches Landmark Survey on Women’s Sexual Health (June 2020 – Press Release)

(Washington, DC)—The Lung Cancer Registry has launched a landmark new survey on the impact of lung treatments on women’s sexual health. The aim is to explore the magnitude of the problem and give researchers and clinicians new insights to improve the quality of life for women lung cancer survivors.

This Is Our Registry + NEW Participant Video (June 2020 – Newsletter)

Participate in the Lung Cancer Registry, a community powered by patients and the patient voice. Together, moving lung cancer developments forward.

New COVID-19 Poll & 7 Tips or Coping with Your Emotions (March 2020 – Newsletter)

The Lung Cancer Registry is tracking information on how COVID-19 may be affecting your or your loved one’s cancer care.

New Surveys + Registry Insights on Stigma (February 2020 – Newsletter)

We launched new and improved surveys in November that are designed to better understand your lung cancer journey. The health data we gather from you and other registry participants provide insights to guide researchers and insights for you as well.

New SURVEYS to Capture Key Data (December 2019 – Newsletter)

We have exciting news and we wanted you to be the first to know.

Lung Cancer Registry - Lung Cancer Patient Survey Analysis April 2019 (January 2019 Data)

This April 2019 analysis provides patient insights from the patient-reported data collected through the “Lung Cancer Patient Survey” in the Lung Cancer Registry from November 2016 - January 2019.

Lung Cancer Registry - Lung Cancer Patient Survey Analysis September 2018 (June 2018 Data)

This September 2018 analysis provides patient insights from the patient reported data collected through the “Lung Cancer Patient Survey” in the Lung Cancer Registry from November 2016 - June of 2018.

Lung Cancer Registry Launches New Surveys - Share YOUR story

New Modules to Capture Longitudinal Data on Lung Cancer Patients

Rates of Support and Care Offerings Among Patients in an Advocacy Organization Sponsored Lung Cancer Patient Registry

Examination of Genetic Alterations in Young Lung Cancer Patients From the Lung Cancer Registry

The Power of One Leads to Progress for Many - Interview Sandra Shaw Director of the Lung Cancer Registry

Reprinted with permission from Patient Resource LLC. Copyright 2019 Patient Resource LLC

The Gift of Cancer Registries

Our Lung Cancer Registry highlights the value of patient-driven research in CURE Magazine - "The Gift of Cancer Registries" by Marilyn Fenichel