Rates of Support and Care Offerings Among Patients in an Advocacy Organization Sponsored Lung Cancer Patient Registry

Examination of Genetic Alterations in Young Lung Cancer Patients From the Lung Cancer Registry

The Power of One Leads to Progress for Many - Interview Sandra Shaw Director of the Lung Cancer Registry

Reprinted with permission from Patient Resource LLC. Copyright 2019 Patient Resource LLC

"Lung Cancer Survivors: Your input is needed!" a blog article by lung cancer patient, Donna Fernandez

Donna talks about the Registry and how it unites voices from the community, shares the needs and experiences, and helps learn from others.

A Real-World Example: ALCF Immunotherapy Survey

The current ALCF immunotherapy survey is an example of how the registry can be used in research with patients in specific subpopulations to help fill in known information gaps. The survey is a research study exploring the side effects patients experience when receiving treatment with immune checkpoint inhibitors, which is a form of immunotherapy.

Abstract ASCO-SITC 2019 Immunotherapy Symposium

Patient Reported Toxicities: Development and Validation of Patient Reported Symptom Measure for Lung Cancer Patients Receiving Immunotherapy